Ipnet, the International Porphyria Network, is a non-profit learned association (or scientific association), having its office in Bergen, Norway. Ipnet will promote fundamental and clinical research in the field of porphyrias, improve knowledge of the porphyrias and facilitate best practice in their treatment and diagnosis by accommodating and interconnecting expert activities across the world in the service of porphyria patients. Ipnet is an international organization dedicated to improving the diagnostics and treatment for porphyria.

Napos is a Norwegian scientific center for the development and distribution of knowledge related to porphyria. It is a unit of Helse Bergen, Haukeland University Hospital, and also under the Norwegian Centre for Rare diseases, a unit of Oslo University Hospital.